Institutional Biosafety Committee Transparency Survey
(brief background information on the study, posted on January 30th)


Preliminary Statistics on IBC Response to Public Access Requests
Last Updated: 2 September 2004

(Replies noted are not an indication of the quality of the response. A 'reply' simply indicates that the
IBC has contacted the Sunshine Project in response to the survey letter.)

IBCs receiving request: 390 (+1)*
Replies received: 276 (70.7%)
Failed to reply: 115 (29.3%)

*One IBC, which was not surveyed, replied anyway. The reply will be used;
but not incorporated into calculations of (non)reply rates.

Responses will continue to be accepted and, indeed, are required by the NIH Guidelines.
Late arriving replies will be noted as such in the final report.

Quote of the Month for the IBC Transparency Survey

"A country that hides something is a country that is afraid
of getting caught, and that was part of our calculation."

- George W. Bush, 13 April 2004

FULL LIST OF IBCs SURVEYED, RESPONSE STATUS, COMPLAINTS LODGED
(key to case numbers below)

IBC
REPLY RECEIVED?
MINUTES PROVIDED?
COMPLAINT FILED or PENDING?
70.7% (276)
58.7% (229)
10.8% (42)
Abbott Bioresearch Center
NO
-
  
Abbott Laboratories (IL)
NO
-
  
Abgenix, Inc.
NO
-
  
Alabama A&M
YES
YES
  
Albany Medical College
NO
-
  
Albany Regional Cancer Center
NO
-
  
Albert Einstein College of Medicine
YES (late)
YES
  
Alpha Vax, Inc.
YES (late)
YES
  
American Type Culture Collection
YES (late)
YES
  
Amgen, Inc.
NO
-
  
Androscoggin Cardiology Associates
NO
-
  
Arizona Heart Institute
YES (late)
YES (case #1)
  
Arizona State University
YES
YES (case #3)
  
Asociaci—n Civil Impacta Salud y Educaci—n (Peru)
YES (late)
YES (case #1)
  
Auburn University
YES
YES
  
Ball State University
YES
YES
  
BallFloraPlant (Arroyo Grande, AZ)
YES
NO (case #2)
  
BASF Plant Science Corp (RTP, NC)
NO
-
  
BASF Plant Sciences (ExSeed Research) (Ames, IA)
NO
-
  
Battelle Memorial Institute (Columbus)
YES (late)
NO
pending
Baylor College of Medicine
YES
YES
  
Beth Israel Medical Center
NO
NO
  
Blue Sky Biotech
YES
YES
  
Boston Biomedical Research Institute
NO
-
  
Boston University Medical Center
YES (late)
YES
  
Bowling Green State University
YES
YES
  
Brandeis University
YES
YES
  
Brigham Young University
NO
-
  
Brown University
YES
YES
  
Buck Institute for Age Research
NO
-
  
Bucknell University
NO
-
  
Calgene LLC (Davis, CA)
YES (late)
NO (case #3)
PENDING
California Institute of Technology
YES
YES
  
California State University, Long Beach
NO
-
  
Cancer Care Northwest
NO
-
  
Cancer Centers of Florida
NO
-
  
Cardiovascular Consultants of Oregon
NO
-
  
Cardiovascular Medical Group of Southern California
NO
-
  
Carnegie Mellon
YES
YES (case #3)
YES
Case Western Reserve University
YES (late)
YES
  
Cell Genesys, Inc.
NO
-
  
Center for Blood Research, Inc.
NO
-
  
Children's Hospital Oakland Research Institute
YES (late)
YES
  
Children's Hospital of Philadelphia
YES (late)
YES
  
Children's Hospital of Pittsburgh
YES (late)
YES
  
Childrens National Medical Center
YES
YES
  
Children's Research Institute
NO
-
  
Chiron (Emeryville, CA)
NO
-
  
Cincinnati Children's Hospital Medical Center
NO
-
  
City of Hope
YES
YES
  
Clemson University
NO
-
  
Cold Spring Harbor Laboratory
NO
-
  
Colorado State University
YES
YES
  
Columbus Childrens Research Institute
YES
YES
  
Comprehensive Blood and Cancer Center (Bakersfield, CA)
YES (late)
YES (case #1)
  
Connecticut Agricultural Experiment Station
NO
-
  
Corixa Corp.
NO
-
  
Cornell University
YES
YES (case #3)
YES
Cornell University Medical College
NO
-
  
CP Kelco
NO
-
  
CUNY - Queens College
NO
-
  
Curis, Inc
NO
-
  
Dana-Farber Cancer Institute
YES
YES
  
Danforth Plant Science Center
YES
YES (case #3)
YES
Dartmouth College
YES
YES
  
DOD Department of Veterans Affairs
YES
NO
  
DOD Uniformed Services University of the Health Sciences
YES (late)
NO
  
DOD US Military HIV Research Program
YES
YES
  
DOD Walter Reed Army Institute & Navy Medical Research Center
NO
-
  
DOD Walter Reed Army Medical Center
YES (late)
YES
  
DOE Brookhaven National Laboratory
YES
YES
  
DOE Idaho National Engineering and Environmental Lab
YES (late)
YES
  
DOE Lawrence Berkeley National Lab
YES (late)
YES
  
DOE Lawrence Livermore National Lab
YES
YES
  
DOE Los Alamos National Laboratory
YES (late)
YES
  
DOE National Renewable Energy Laboratory
YES
NO
  
DOE Oak Ridge National Laboratory
YES (late)
YES
  
DOE Sandia National Lab
YES
YES
  
Drexel University College of Medicine
NO
-
  
Duke University Medical Center
YES (late)
NO (case #3)
pending
DuPont Central Research and Development
NO
-
  
Duquesne University
YES
YES (late)
YES
East Carolina University
YES
YES
  
East Tennessee State University
NO
-
  
Eastern Virginia Medical School
YES (late)
YES
  
ECI Biotech
YES
NO (case #3)
  
Eli Lilly Research Laboratories
NO
-
  
Embrex, Inc.
NO
-
  
Emory University School of Medicine
YES (late)
YES (case #3)
pending
EntreMed, Inc.
NO
-
  
Erskine College
YES
YES
  
Evanston Northwest Healthcare
NO
-
  
Fenway Community Health (Boston)
YES
YES
  
Finch University of Health Sciences
YES
NO (case #4)
  
Florida Atlantic University
YES (late)
YES
  
Florida Hospital Cancer Institute (formerly Walt Disney Memorial)
YES
YES (case #1)
  
Florida State University
YES
YES
  
Fred Hutchinson Cancer Research Center
YES
YES
  
Genelabs Technologies Inc.
NO
-
  
Genencor, Inc. (Palo Alto, CA)
NO
-
  
Genencor, Inc. (Rochester, NY)
NO
-
  
GenPath Pharmaceuticals Inc.
NO
-
  
Genzyme Corporation
NO
-
  
Genzyme Corporation (Allston, Ma)
NO
-
  
George Washington University Medical Center
YES
YES
  
Georgetown University Medical Center
YES (late)
YES
  
Georgia Institute of Technology
YES
YES (late)
 
GPC Biotech, Inc.
NO
-
  
Hackensack University Medical Center
NO
-
  
Harbor-UCLA Medical Center
YES
YES
  
Harvard Medical School
YES
YES
  
Hawaii Biotech Inc
YES
YES
  
HHS Centers for Disease Control / NCID
NO
-
  
HHS National Cancer Institute - Frederick
YES
YES
  
HHS Rocky Mountain Labs
YES (late)
YES
  
Highlands Oncology Group
NO
-
  
Hoag Hospital (Cancer Center)
YES
YES (case #1)
  
Hope Heart Institute
NO
-
  
House Ear Institute
NO
-
  
Hunter College (CUNY)
NO
-
  
Illinois State University
YES (late)
YES
  
Immunogen, Inc.
YES
YES
  
Indiana State University
NO
-
  
Indiana University - Bloomington
YES (late)
YES
YES
Indiana Univ./Purdue Univ. - Indy
YES (late)
YES
YES
Intermountain Health Care
YES
NO (case #5)
  
Introgen Therapeutics, Inc.
YES
YES
  
Iowa Methodist Medical Center
NO
-
  
Iowa State University
YES (late)
YES (case #3)
YES
Ithaca College
NO
-
  
Jackson Laboratory
YES
YES
  
Jacksonville Heart Center
YES
YES (case #1)
  
Johns Hopkins Institutions
YES (late)
YES (case #3)
pending
Johnson & Johnson (former R.W. Johnson, Spring House PA)
YES
NO (case #5)
  
Kansas State University
YES
YES
  
La Jolla Institute for Allergy and Immunology
NO
-
  
Lahey Clinic (MA)
NO
-
  
Lenox Hill Hospital
NO
-
  
Life Technologies, Inc.
NO
-
  
Lifebridge Health (Sinai Hospital of Baltimore)
YES
NO (case #5)
  
Lifespan (Rhode Island)
YES
YES
  
Loma Linda University
NO
-
  
Maine Medical Center
YES
YES
  
Marine Biological Laboratory (Woods Hole, MA)
NO
-
  
Marquette University
YES
NO (case #5)
  
Marshall University
YES
YES
  
Mary Crowley Medical Research Center
NO
-
  
Maryland Hematology/Oncology Associates
NO
-
  
Massachusetts Institute of Technology
YES
YES
  
McLaughlin Research Institute
NO
-
  
Medical and Surgical Specialists, LLC
YES (late)
YES (case #1)
 
Medical College of Georgia
YES
YES (case #3)
YES
Medical College of Ohio
YES
YES
  
Medical College of Wisconsin
YES
NO
YES
Medical University of South Carolina
YES
YES
  
MedImmune, Inc.
YES
NO (case #4)
  
MedStar Research Institute
NO
-
  
Megan Health Inc. (aka Avant Immunotherapeutics)
YES
YES (case #3)
  
Meharry Medical College
NO
-
  
Melanoma Center of St. Louis
NO
-
  
Memorial Sloan-Kettering Cancer Center
NO
-
  
Mendel Biotechnology, Inc
YES
YES
  
Miami University
YES
NO
  
Microbia Inc.
YES (late)
YES (case #3)
pending
Millenium Pharmaceuticals
YES
YES
  
Minneapolis Heart Institute Foundation
YES
YES (case #1)
  
Mirus Corporation
NO
-
  
Mississippi State University
YES
NO
  
Monell Chemical Senses Center
YES
YES
  
Monsanto Company (Middleton, WI)
YES
(case #3)
Monsanto Company (Mystic, CT)
YES (late)
YES
Monsanto Company (San Diego, CA)
NO
(case #3)
Monsanto Company (St. Louis, MO)
YES (late)
YES (case #3)
pending
Montana State University
YES
YES
  
Mt. Sinai Medical Center
YES
NO
YES
New England Biolabs
YES
YES
  
New York Blood Center
NO
-
  
New York Medical College
NO
-
  
New York University School of Medicine
NO
-
  
North Carolina A&T State University
YES
YES (case #3)
  
North Carolina State University
YES (late)
NO (case #3)
  
North Dakota State University
YES (late)
YES
  
North Memorial Health Care (MN)
YES
YES (case #1)
  
North Shore - Long Island Jewish Health System
YES
YES
  
Northeastern Ohio Universities College of Medicine
YES (late)
YES
  
Northeastern University
NO
-
  
Northern Arizona University
YES
YES (case #3)
  
Northern Illinois University
NO
-
  
Northwestern University
YES
YES (case #3)
  
NovaFlora Inc.
NO
-
  
Ohio State University
YES (late)
YES
  
Ohio University
YES
YES
  
Oklahoma Medical Research Foundation
NO
-
  
Oklahoma State University
YES (late)
YES
  
Old Dominion University
YES
YES
  
Omnigene Bioproducts Inc.
YES
YES
  
Oncology Specialists, S.C.
NO
-
  
Oregon Health Sciences University
YES (late)
NO (case #3)
YES
Oregon State University
YES
YES
  
Origen Therapeutics
YES
YES
  
OSI Pharmaceuticals
NO
-
  
Pennsylvania State College of Medicine / Hershey Medical Center
YES (late)
YES
Pennsylvania State University
YES (late)
YES
  
Pfizer Discovery Technology Center (Cambridge, MA)
YES
YES
  
Pfizer Global Manufacturing (Terre Haute)
NO
-
pending
Pharmacia & Upjohn (Kalamazoo, MI)
NO
-
  
Princeton University
YES
YES
YES
ProMedica Health System
YES
YES
  
Promega Corp.
NO
-
  
Providence Portland Medical Center
YES
YES
  
Purdue University
YES
YES
  
PureTech Ventures LLC
NO
-
  
Research Institute for Children (LA)
YES (late)
YES
  
Rice University
YES
YES (case #5)
  
Rider University
YES
NO (case #4)
  
Rockefeller University
YES (late)
YES
YES